|
|
|
INDEX TO TALKS AND PRESENTATIONSIntroductionThis Website has been built up over the years as a series of meeting reports and patient stories. Inevitably this has resulted in its being difficult to find information on any particular aspect of GIST and its treatment. The following are a series of abstracts and links to the relevant sections of the various meeting reports. A talk by Dr Michelle Scurr, Consultant Oncologist at The Royal Marsden, on the latest approaches to the treatment of GIST given in London in October 2010. Patients' questions answered by Dr Mike Leahy and Dr Bill Newman in Manchester in May 2008. Questions included questions on diet and mutational testing. The role of surgery in the treatment of GIST A talk by Mr Satvinder Mudan and Mr Evangelos Efthimiou workshop given at the patient meeting in London on 25th october 2007. The talk was accompanied by slides showing the resection of GISTs. A workshop led by Judith Robinson on what we should expect from the Clinical Nurse Specialist (London on 22/10/10). This 100-page book, with many illustrations, was published by Das Lebenshaus in 2008 and subsequently translated into English. It gives a very good description of what a GIST is and how it can be treated. It may be read on screen or printed out. Talk on adjuvant treatment of GIST with imatinib In this talk, given at the 2008 patient information meeting in Sheffield, Professor Penella Woll dicusses the EORTC Adjuvant Imatinib trial and the eligibility criteria for entry into the trial (now closed). Her talk was followed by an interesting question and answer session. The role of pathology in the identification and treatment of GIST A talk by Dr David Hughes given to our Sheffield Meeting in May 2008. Dr Hughes' talk was followed by a very interesting question and answer session. The role of NICE in the treatment of GIST. A talk by Roger Wilson given at our Manchester meeting in 2009 explaining the way in which NICE appraises new treatments. He also referred to the NICE "Improving Outcomes Guidance for the Treatment of Sarcoma" which was published in 2006 but which had not yet been fully implemented across the country. A talk by Dr Dominic Bray given at our Manchester meeting in 2009. Dr Bray is a clinical psychologist and in his talk he offered strategies, both for patients and carers, for coping with the emotional stress of an unwelcome diagnosis or prognosis. His session was followed by questions and a discussion. A talk by Dr Mike Leahy given at our Manchester meeting in 2009 describing the current status of research into GIST. Dr Leahy's talk was followed by a question and answer session. A talk by Nick Duncan, pharmacist at the Queen Elizabeth Hospital Birmingham at our Birmingham meeting in 2010. In this presentation Nick Duncan talked about the common side-effects of imatinib, sunitinib and nilotinib, and suggested techniques for managing them. A table giving the results of a straw poll on side-effects, taken among attendees at the London Patient Information meeting in October 2009. Hugh's personal experience of the side-effects of imatinib and how he manages them. The use of imaging for diagnosis A talk by Dr Zahir Amin, given in London 2009, on the different types of imaging technology and their role in the diagnosis and treatment of GIST. Sharing information and the role of the carer A report on a workshop held at the London 2009 at which patients and carers were invited to share their feelings and experiences with each other. A talk given in 2010 by Dr Geh and Dr Taniere, both from the Queen Elizabeth Hospital in Birmingham, about the different mutations of GIST and how they affect treatment. A talk by Jane Ballantyne, McMillan Benefits Advisor on the different state benefits available for cancer sufferers and how to access them to the best advantage. The role of complementary therapies Report on a discussion at the 2007 London Patient Meeting on the use of complementary therapies and patients' experience of them. |
