|
|
|
PAWS-GIST (Paediatric, Adolescent, Wildtype & Syndromic-GIST)is a specialist focus group consisting of Parents of young GIST patients, Specialist GIST doctors & GIST Support UK which started in November 2010.
Working in partnership with experts in America & Europe we aim to improve treatment & ultimately find a cure for PAWS-GIST in the UK.
If you are a Paediatric or Wildtype GIST patient/carer Please make contact with us. Our numbers are small, so we need everyone to be involved in order to take full advantage of the help that is being offered.
We are hoping to encourage the establishment of a clinic in the UK for PAWS-GIST patients. This clinic will probably meet once or twice a year and its objective will be to develop greater expertise in treating this rare group of patients. We hope that the clinicians involved will act as a focus group for oncologists all over the UK.
A small group of PAWS-GIST patients and carers has already started raising funds for this initiative and for research.
If you would like to support this aim with a donation please see our just giving page www.justgiving.com/PAWS-GIST alternatively you can set up your own justgiving page to raise funds for PAWS-GIST or you can click here to download a PAWS-GIST sponsorship form which you can use.
There is a Facebook page which PAWS-GIST patients may like to use, and you can also keep up with us on Twitter. If you are affected by PAWS-GIST and would like to learn more or be involved with any of these initiatives please contact
Jayne Bressington at or Posted: 18/04/2011 |
