Gist Support UK is there to be with you as you come to terms with living with GIST. We are a network of patients and their carers, all of whom are affected by GIST. We share experience and offer each other mutual support by telephone and by email. Currently we also hold two meetings a year, where members have the opportunity to meet together, and also to meet professionals working in the field. You will find reports of the most recent meetings on this website.

We have information about GIST and therapy options, chances and risks, and new clinical trials and we offer you the opportunity to share with other patients. All this can help you to find your bearings and to make more informed choices about your treatment. Being an informed patient will lessen the feeling of being at the mercy of this illness and will help you to feel more in control of your life again.

If you have GIST, and if you can accept and come to terms with the illness, you can continue to lead a ‘normal’ life. Every day, research into GIST is giving us new knowledge, and new therapy options are being explored and trialed.