May 2008
SHEFFIELD MEETING
We held another very interesting and supportive meeting with 55 patients and carers at the Hilton Hotel in Sheffield on 9th May. Our two speakers were Professor Penella Woll and Dr David Hughes, both from the Sheffield GIST team. Both talks provoked interest, laughter and a number of questions. For a full report of this meeting click on "Sheffield Meeting 2008" in the navigation bar.
LONDON MEETING
This is advanced notice of our next London Meeting which will be on 29th September. Further details will be given on this site in due course.
November 2007
GIST BOOKLET
We are grateful to our member Peter Greenwood for producing this convenient pocket-sized booklet in which you can note details about your GIST and any medication you are on. It is intended for use in the event of a medical emergency. It has spaces for your oncologist, the drugs you are on, etc, and lists the drugs to be avoided if you are on Glivec or Sutent. The booklet is a translation from the German of an equivalent booklet produced by Das Lebenshaus. For your own copy of the booklet please contact (A donation of £1 would be welcome to cover costs and postage!)
November 2007
LONDON MEETING
We had a very successful and well-attended meeting for GIST patients and their carers in London on 25th October. There was a presentation by GIST surgeons Satvinder Mudan and Evangelos Efthimiou from the Royal Marsden Hospital, followed by a question and answer session. For a full report click on "London Meeting Oct 2007".
August 2007
"DEFENDING THE NHS"
Professor William Hampton has written an article on the importance of preserving the independence and quality of our NHS. This was published recently in the Sheffield Star, but it deserves wider circulation. Click here for the full text of Bill Hampton's article.
July 2007
BAD NAUHEIM DECLARATION
Members of the Worldwide GIST Community met together with representatives of Novartis in Bad Nauheim at the beginning of July. At the meeting a proposed set of standards for the treatment of GIST was drawn up and agreed. Click here for the full text of the Declaration.
Feb 2008
Information on UK Primary Care trusts that honour the Bad Nauheim declaration can be found here on the Sarcoma Trust website. Also listed are those PCTs that have refused funding for treatment.
April 2007
RECENT NEWS FROM NOVARTIS
Novartis has published an interim report on the one-year adjuvant trial for Glivec. (See the Clinical Trials page under Treatment on this site.) It has been a short trial and we await the full publication of this trial in June with great interest, and also the results of other longer trials being undertaken in Europe.
May 2007
RECENT EVENT
Our most recent GIST meeting was held in Manchester on 21st May. For a report on the meeting see under "Manchester Meeting 2007"
