Our Medical Advisory Board

 

The Team

Our Medical Advisory Board (MAB) comprises a specialist multidisciplinary team of GIST and tissue banking experts from leading medical and academic institutions around the UK. They are the principal advisory group offering insight, scientific direction, and expertise for GIST Support UK’s research grant and infrastructure initiatives. The MAB advises the GIST Support UK Trustees regarding:

  • The long-range strategy of GIST Support UK for achieving its mission to improve treatments and finding a cure for GIST Cancer.
  • Proposals for new research grants.
  • Other matters upon which the GIST Support UK trustees request advice and recommendations. The MAB typically consists of up to ten members including a Chairman who meet a minimum of twice a year. The initial term of appointment of each member is three years with the option of renewing for a further three years (after which they must retire but can rejoin after three years). 
  • They collaborate with GIST experts and researchers world-wide to ensure the most up to date knowledge and perspectives on treatments for GIST patients and the ongoing work of GIST Support UK.

Professor Ian Judson

Prof Ian Judson- FRCP, Royal College of Physicians, London
- MD, University of Cambridge
- BA (Hons), Natural Sciences, Univesity of Cambridge
- MB, BChir,, University of Cambridge

Professor Judson has specialised in the management of sarcomas for the past 20 years and has made a particular study of gastrointestinal stromal tumours (GIST). He was a principal investigator in the Phase I/II trial of imatinib for GIST in 2000/1 and has been actively involved in research into the treatment of this disease since that time. 


Dr Ramesh Bulusu 

Consultant Clinical Oncologist MD, MRCP, MSc, FRCR (Oncology)

Dr Ramesh BulusuDr Bulusu is the alliance lead and one of the national experts on gastrointestinal stromal tumours (GIST). Working with other specialists in this area, he has developed the national guidelines for the management of this tumour and has lectured, presented and published extensively on the subject.

He is actively involved in numerous clinical trials as a principal and co investigator and has been the consultant clinical lead for PAWS-GIST since its inception in November 2010.


Professor Andrew Hall

MBBS,MRCP,PhD,FRCPath

Prof. Andrew Hall- Director, Northern Institute for Cancer Research
- Director, Newcastle Biomedicine Biobank
- Designated Individual for Human Tissue Act Research Licence for Newcastle University
- Professor of Experimental Haematology
- Honorary Consultant Haematologist, Newcastle upon Tyne NHS Foundation Trust
- Pathology Lead, NCRI Confederation of Cancer Biobanks

Professor Hall has been instrumental in setting up of the National GIST tumour bank.


Dr Palma Dileo

Dr Palma Dileo is Consultant Medical Oncologist on the Sarcoma Unit at University College Hospital, UCLH NHS Trust, specialising exclusively in the management (chemotherapy and radiotherapy) of soft tissue and bone sarcomas. The Sarcoma Unit at UCLH, together with the Sarcoma Unit at the Royal National Orthopaedic Hospital, is the London Sarcoma Service (www.londonsarcoma.org) which offers a comprehensive clinical service to patients of all ages with sarcoma at all sites of the body. She has continued to provide patient care since 1996 (general oncology), with more emphasis on sarcoma and rare tumors starting from 1998. She completed her training at the Istituto Nazionale Tumori of Milan, Italy and at Dana-Farber Cancer Institute, Boston, USA. From 2006 to 2010 she has been Associate Physician, Medical Oncology, Istituto Nazionale Tumori, Milan working in the Sarcoma Team. She has a strong interest in early phase clinical trials and is a co-investigator for a number of clinical trials in sarcoma. She is a member of the EORTC Soft Tissue and Bone Sarcoma Group and ASCO.


Dr Newton Wong

Consultant Histopathologist - BSc MRCP , MBChB, FRCPath, MD

Dr Newton Wong Areas of interest:
- Molecular diagnostics;
- Gastrointestinal pathology;
- GIST


Dr Robin Jones

Dr Robin Jones is a medical oncologist specialising in the treatment of bone and soft tissue sarcomas. He has experience in conducting Phase I, II and III trials, as well translational studies in sarcoma. He trained in medical oncology at the Royal Marsden Hospital and between 2010 and 2014 he was Head of the Sarcoma Program at the University of Washington / Fred Hutchinson Cancer Research Center in Seattle. His main research interest focuses on clinical trials of novel agents and immunotherapy in sarcoma.


Dr Phillippe Tanniere

Consultant in Histopathology

Dr Phillippe TanniereDr Phillippe Tanniere Consultant in Histopathology at the Queen Elizabeth Hospital and Honorary Senior Lecturer at the Medical School, Birmingham, with a special interest in gastro-intestinal and pancreatico-biliary pathology.


Professor Penella Woll

Prof Penella WollProf Woll's main clinical and research interests are in lung cancer and sarcomas. She has extensive experience of clinical trials testing new treatments for these tumour types, and she is a member of national and international collaborative groups, including NCRI and EORTC clinical trials groups. Her laboratory research is centred on lung cancer biology. She is particularly interested in growth regulation and the role of neuropeptide growth factors in lung cancer. Recent work has focused on plasma DNA in the early diagnosis of lung cancer. Her research objective is to develop and evaluate novel approaches to the diagnosis and treatment of lung cancer and sarcomas.


Dr Maria Marples

Dr Maria MarplesDr Marples is a medical oncologist, whose special interests are melanoma, sarcoma, and cancers of teenagers and young adults (TYA). She is the local principal investigator in Leeds on a range of clinical trials, looking at new treatments for melanoma and sarcoma, and also at how effective current treatment approaches are. She has led several projects assessing existing services which have led to quality improvements in clinics.


Dr Michael Leahy

Consultant Clinical Oncologist - BSc (Hons), MBBS, PhD, FRCP

Dr Michael LeahyDr Michael Leahy attended medical school in London and trained in oncology at the Royal London Hospital and St Bartholomew's before completing his specialist training at The Christie, Manchester, in 1998. He spent six years at the University of Leeds as senior lecturer in medical oncology and is now based in Manchester as a medical oncologist on the supra-regional sarcoma and testicular cancer multi-disciplinary teams. Dr Leahy has worked with the PAWS-GIST Alliance since its inception.

 

Update on GIST clinical trials that are recruiting and in the pipeline....

Forthcoming Patient Meetings

  • Friday 17th March in Sheffield
  • Friday 6th October in Cardiff
  • Friday 9th March 2018 in London

More information will appear on this website in due course.

We have launched our first GIST patient survey and hope to gather a better understanding of the landscape for GIST patient treatment in the UK. The survey closes on 10th September 2016 so if you would like to participate please complete the survey by clicking this link

'ALT' GIST Trial to open in the UK soon! We have been alerted to a new trial that will be opening in the UK in the near future for metastatic GIST patients. Read more on our Trials & Research page 

PAWS-GIST Clinic 7 - Newsletter June 2016

GSUK attends Cancer52 parliamentary reception to raise awareness of rare and less common cancers.

GSUK Research Update 2016 - Read all about it here

NHS England's Sarcoma Service Specification consultation is open until Weds 20th April 2016.       Please register your views by responding directly via this link.                             GSUK's response can be viewed here

Cycle for GSUK! We have four allocated charity places on the RideLondon event for this year and also for 2017 and 2018. Go to our News page to find out more!

The Masitinib Trial is now open.  For further details of this trial, and to find out which centres and clinicians are involved, please go to our Research & Trials page. 

Regorafenib has remained on the NHS England Cancer Drug Fund List for GIST patients! Read more!

Can you help Professor Eamonn Maher with his research Study? If you have had, or have, two or more primary GISTs, or a GIST and another tumour, find out more at the bottom of our research page

PRESS RELEASE - UKTV announces GIST Support UK as its Charity of the Year 2015

TUMOUR BANK UPDATE: "We have been granted approval from the NHS ethics committee for our National GIST Tissue Bank which will store these valuable GIST tumour samples for research. If you are about to have an operation and would like to donate your tissue for research please email  with your contact details. Visit our Retention of tissue page for regular updates.

Scottish Sarcoma Network: Interested in attending their Sarcoma education days or finding out about the services on offer ? Read our News page

Use of human tissue
Do go to our new "Retention of Tissue" page and please sign a consent form!

GSUK funds research!
GSUK provides £20,000 from donated funds to help start a research project at the Royal Marsden. Visit our News page for further information and picture.

Funds being raised for UK PAWS GIST clinic
See our News Page for more information.

NICE approves improved treatment for ascites
The PleurX system allows the patient to drain fluid from the abdominal cavity without having to pay repeated visits to hospital. More information on our News Page.

European Commission approves three years' adjuvant use of Glivec
Visit our News page for more details.

Masitinib
A press release in February claiming the effectiveness of this drug as a replacement for Sunitinib appeared to be premature at the time. However subsequent news may be more encouraging! See our News page for more details.