On the 10th October the Scottish Sarcoma network are holding a day called RISE at the Western Park Hotel in Falkirk. The day is dedicated to people with a sarcoma diagnosis and their families to focus on "what matters to me". This poster contains the registration details if you would like to attend. GIST Support UK will be represented at this meeting and we look forward to seeing you.
If you would like to come to our next patient meetings they are in Manchester - Friday, 5th October 2018
If you would like to attend, please email
A big thank you to Scotmid Co-operative for choosing to support GIST Support UK and the development of our national tissue bank. Read more here
"NEWS RELEASE": CANCER CHARITY GIST SUPPORT UK CELEBRATE THE NICE APPROVAL OF REGORAFENIB FOR GIST CANCER PATIENTS READ ABOUT IT HERE
If you missed any of our previous meetings, you can view the speakers' presentations here
Clinical Trial - 3 v 5 years adjuvant imatinib - trial centre list update here
19th August 2017 - Page 19 of the Times GIST report - READ HERE
New UK clinical practice guidelines for the management of gastrointestinal stromal tumours (GIST) published by British Sarcoma Group - NEWS >>>
GSUK's Chair Nic Puntis discusses the BBC's report on the Cancer Drugs Fund on BBC Wiltshire Radio - NEWS>>>.
Update on GIST clinical trials that are recruiting and in the pipeline....
Forthcoming Patient Meetings
- Friday 5th October 2018 in Manchester
More information will appear on this website in due course.
We have launched our first GIST patient survey and hope to gather a better understanding of the landscape for GIST patient treatment in the UK. The survey closes on 10th September 2016 so if you would like to participate please complete the survey by clicking this link
'ALT' GIST Trial to open in the UK soon! We have been alerted to a new trial that will be opening in the UK in the near future for metastatic GIST patients. Read more on our Trials & Research page
PAWS-GIST Clinic 7 - Newsletter June 2016
GSUK attends Cancer52 parliamentary reception to raise awareness of rare and less common cancers.
GSUK Research Update 2016 - Read all about it here
NHS England's Sarcoma Service Specification consultation is open until Weds 20th April 2016. Please register your views by responding directly via this link. GSUK's response can be viewed here.
Cycle for GSUK! We have four allocated charity places on the RideLondon event for this year and also for 2017 and 2018. Go to our News page to find out more!
The Masitinib Trial is now open. For further details of this trial, and to find out which centres and clinicians are involved, please go to our Research & Trials page.
Regorafenib has remained on the NHS England Cancer Drug Fund List for GIST patients! Read more!
Can you help Professor Eamonn Maher with his research Study? If you have had, or have, two or more primary GISTs, or a GIST and another tumour, find out more at the bottom of our research page
PRESS RELEASE - UKTV announces GIST Support UK as its Charity of the Year 2015
TUMOUR BANK UPDATE: "We have been granted approval from the NHS ethics committee for our National GIST Tissue Bank which will store these valuable GIST tumour samples for research. If you are about to have an operation and would like to donate your tissue for research please email with your contact details. Visit our Retention of tissue page for regular updates.
Scottish Sarcoma Network: Interested in attending their Sarcoma education days or finding out about the services on offer ? Read our News page
Use of human tissue
Do go to our new "Retention of Tissue" page and please sign a consent form!
GSUK funds research!
GSUK provides £20,000 from donated funds to help start a research project at the Royal Marsden. Visit our News page for further information and picture.
Funds being raised for UK PAWS GIST clinic
See our News Page for more information.
NICE approves improved treatment for ascites
The PleurX system allows the patient to drain fluid from the abdominal cavity without having to pay repeated visits to hospital. More information on our News Page.
European Commission approves three years' adjuvant use of Glivec
Visit our News page for more details.
A press release in February claiming the effectiveness of this drug as a replacement for Sunitinib appeared to be premature at the time. However subsequent news may be more encouraging! See our News page for more details.