Founding Members of the International Paediatric and SDH-Deficient GIST Consortium – September 2018

GIST SUPPORT UK UNITES WITH WORLD EXPERTS AS FOUNDING MEMBERS OF THE  “INTERNATIONAL PAEDIATRIC AND SDH-DEFICIENT GIST CONSORTIUM” GIST Support UK and our specialist clinic team PAWS-GIST at the  Addenbrooke’s Cambridge University Hospital NHS Foundation Trust have  joined forces with Liferaft Group of America and world specialists as  founding members of the International Paediatric and […]

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7th SPAEN Annual Conference, September 8-10, 2016 in Warsaw, Poland

  Once again, the community of patient advocates for sarcomas, GIST and desmoids came together for the annual Sarcoma PAtients EuroNet Conference. This year, Poland was the host country, welcoming all participants with great hospitality and warmth to their beautiful capital Warsaw. The three conference days were full of learning about medical topics ranging from […]

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GIST Support UK attends Cancer52 parliamentary reception – May 2016

On 20th April Nic Puntis (Chair GSUK) & Jayne Bressington (Vice Chair GSUK / Patient Director PAWS-GIST, pictured left) went to Westminster and attended a parliamentary reception organised by Cancer52, a coalition of more than 80 charities representing rare and less common cancers. The reception was hosted and addressed by Chairman of the All-Party Parliamentary Group on Cancer […]

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#100,000voices e-petition delivered to No. 10 Downing Street – 23 June 2015

Sincere thanks to everyone who has supported us with the call to retain regorafenib on the Cancer Drugs fund for GIST patients. Yesterday was our appointment with No. 10 Downing Street to deliver our #100,000voices e-petition containing 103,841 signatures supporting retention of regorafenib for GIST patients in England. We were joined by MP’s representing constituents […]

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Scottish Sarcoma Network – 2013

Patients who are interested, are welcome to attend any of the Sarcoma education days, which you can see on the Scottish Sarcoma Network website. www.ssn.scot.nhs.uk/ Any patients that are interested in these days, or would be interested in extra support, find out about available services or need help with any concerns are encouraged to get […]

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