National Sarcoma Survey 2020

We are doing our best to improve the data that is held by Public Health England and the NHS so that there is a better understanding about GIST and sarcoma. Our friends at Sarcoma UK have just launched a survey covering all sarcomas and GIST, with the aim of gathering new and updated data on […]

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GIST Support UK is changing its name!

Join our FREE ENTRY LUCKY DRAW / Photo competition and help us to spread the word(s)…  GIST Cancer UK! As many of you will know GIST Support UK (GSUK) is in the process of changing names to GIST Cancer UK (GCUK) so that everyone can understand that GIST is cancer.   Continuing the soft launch […]

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PAWS-GIST awarded the National Cancer Research Institute’s Collaboration excellence award 2019!

We are really excited to announce that our PAWS GIST (Paediatric Adolescent Wild-type & Syndromic GIST) alliance has been awarded the National Cancer Research Institute‘s “Collaboration award”. This award recognises our unique European multidisciplinary team of patients, doctors, specialists and researchers who are collaborating to improve treatments and working to find a cure for PAWS-GIST cancer. The nominations […]

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NHS England launches National Sarcoma Service Specification incorporating National GIST Guidelines

NHS England has published the long awaited National Sarcoma Service Specification which incorporates the National GIST guidelines and is designed to clearly state who should be managing GIST and Sarcoma patient care. This is the first time that Sarcoma and GIST services have been commissioned to deliver care to patients across England and follows many […]

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GIST in Cancer52’s “Getting a better deal for Rare and Less Common Cancers report launched today…..

Today ,Cancer52 launched their  “Getting a better deal for Rare Cancers Report“ at the House of Commons in London. Included in the report were rare cancer patient case studies including the case of our very own GIST patient, Stephen Palmer (pictured right), who features throughout the report and whose case study is detailed on page 14. […]

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