NHS England launches National Sarcoma Service Specification incorporating National GIST Guidelines

NHS England has published the long awaited National Sarcoma Service Specification which incorporates the National GIST guidelines and is designed to clearly state who should be managing GIST and Sarcoma patient care. This is the first time that Sarcoma and GIST services have been commissioned to deliver care to patients across England and follows many […]

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GIST in Cancer52’s “Getting a better deal for Rare and Less Common Cancers report launched today…..

Today ,Cancer52 launched their  “Getting a better deal for Rare Cancers Report“ at the House of Commons in London. Included in the report were rare cancer patient case studies including the case of our very own GIST patient, Stephen Palmer (pictured right), who features throughout the report and whose case study is detailed on page 14. […]

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GIST Trustees

Introducing GIST Support UK’s Brand new Website!

We are delighted to mark GIST Support UK’s 10th Anniversary in 2019 with the launch of our brand new website! Our work to support patients and stimulate research for improved treatments and a cure for GIST cancer continues and our address remains the same www.gistsupportuk.com. We hope that you like the new design. With very […]

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News from ASCO 2019

Blueprint Medicines announced data from their registration-enabling NAVIGATOR trial of avapritinib in patients with PDGFRA Exon 18 mutant GIST and fourth-line GIST.   These results were presented at the American Society of Clinical Oncology (ASCO) 2019 Annual Meeting and will form the basis for planned worldwide marketing applications for avapritinib. The data demonstrate clinical activity […]

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Rare Cancer Patient SURVEY – October 2018

GIST SUPPORT UK is a member of Cancer52 who are an alliance of nearly 100 rare cancer groups. Cancer52 members have been approached by the research team at the Sir William Dunn School of Pathology, University of Oxford, who are working on a European funded rare cancer initiative that seeks to find and develop innovative solutions to […]

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New Horizons GIST Conference Report – September 2018

GIST patient advocates from the global GIST patient community came together, to interact with top GIST experts, to have access to state-of-the- art medical and scientific information and to exchange best practice in patient advocacy among each other. The 2018 conference was balanced symbiosis of medical content, advocacy topics and capacity building sessions. NHGIST_2018_Conference-Report_RL_D (3)

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Scotmid Co-operative Support GIST Support UK – February 2018

A big thank you to Scotmid Co-operative for choosing to support GIST Support UK and the development of our National GIST Tissue bank. Scotmid Co-operative are pleased to support GIST Support UK with a donation designed to help find improved treatment for all forms of this rare cancer. GastroIntestinal Stromal Tumours affects both adults and children with approximately 900 new patients […]

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