News from ASCO 2019

Blueprint Medicines announced data from their registration-enabling NAVIGATOR trial of avapritinib in patients with PDGFRA Exon 18 mutant GIST and fourth-line GIST.   These results were presented at the American Society of Clinical Oncology (ASCO) 2019 Annual Meeting and will form the basis for planned worldwide marketing applications for avapritinib. The data demonstrate clinical activity […]

Continue reading

Rare Cancer Patient SURVEY – October 2018

GIST SUPPORT UK is a member of Cancer52 who are an alliance of nearly 100 rare cancer groups. Cancer52 members have been approached by the research team at the Sir William Dunn School of Pathology, University of Oxford, who are working on a European funded rare cancer initiative that seeks to find and develop innovative solutions to […]

Continue reading

New Horizons GIST Conference Report – September 2018

GIST patient advocates from the global GIST patient community came together, to interact with top GIST experts, to have access to state-of-the- art medical and scientific information and to exchange best practice in patient advocacy among each other. The 2018 conference was balanced symbiosis of medical content, advocacy topics and capacity building sessions. NHGIST_2018_Conference-Report_RL_D (3)

Continue reading

Scotmid Co-operative Support GIST Support UK – February 2018

A big thank you to Scotmid Co-operative for choosing to support GIST Support UK and the development of our National GIST Tissue bank. Scotmid Co-operative are pleased to support GIST Support UK with a donation designed to help find improved treatment for all forms of this rare cancer. GastroIntestinal Stromal Tumours affects both adults and children with approximately 900 new patients […]

Continue reading

NICE Approval of Regorafenib for GIST Cancer Patients – October 2017

NEWS RELEASE Cancer Charity GIST Support UK celebrate the NICE Approval of Regorafenib for GIST Cancer Patients Today GIST Support UK, the key charity specifically focused on combating GIST  (gastrointestinal stromal tumour), celebrated the NICE decision to approve regorafenib, a life extending drug, as a third line treatment for GIST cancer patients in England, ensuring […]

Continue reading

GIST & Imatinib in the Times Newspaper – August 2017

On 19th August the Times published an article on page 19 entitled: This article by science correspondent Oliver Moody reports on the remarkable impact that Imatinib (Glivec) has had on the lives of many GIST patients and features quotes from our Medical Advisory Board Chair Professor Ian Judson and his colleague Professor Winette van der […]

Continue reading
Michael Sayers

Michael Sayers – March 2017

It is with great sadness that we have to announce the passing of Michael Sayers. Michael fought a brave battle with GIST for over 13 years and during that time was a Trustee of GIST Support UK. We are sure that many GIST patients and carers benefited from Michael’s advice and support through his postings […]

Continue reading
Strathbogie Junior Agricultural Club

Strathbogie Junior Agricultural Club Support GIST Patients – November 2016

Thank you Strathbogie Junior Agricultural Club! On Wednesday 16th November we were presented with a cheque for £750 raised by the Strathbogie Junior Agricultural Club in Aberdeenshire. Grateful thanks go to Anna Cowie and everyone who has helped to raise this donation. We really appreciate your help and support! Many thanks to everyone who raises […]

Continue reading