First GIST Patient Survey – 2016

Don’t miss the deadline! – our first GIST Patient Survey closes on 10th September 2016… Over the next few months we will be conducting a number of surveys which will help us to understand the current treatment landscape for GIST patients in the UK. We are trying to gather as much feedback as possible on […]

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GSUK Research Update – April 2016

In 2012 GIST Support UK granted £20,000 funding to Professor Ian Judson and his team at the Royal Marsden for a research project. This project aimed to collect tissue samples stored in hospital pathology departments for GIST patients who had been treated at the Marsden over previous years and then to retrospectively undertake mutational analysis of […]

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Regorafenib is now officially back on the cancer drugs fund for GIST patients in England – 2015

23rd May 2015 – We are absolutely delighted to report that Regorafenib is now officially back on the cancer drugs fund for GIST patients in England. This is fantastic news and we would like to thank everyone who contributed to this decision: our fantastic #100,000voices team including William Bassett and the team at TMW. our Clinicians […]

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regorafenib (Stivarga®) is accepted for use within NHS Scotland – 2015

regorafenib has been approved in Scotland for treatment of adult patients with unresectable or metastatic gastrointestinal stromal tumors (GIST) who have progressed on or are intolerant to prior treatment with imatinib and sunitinib. This advice takes account of the benefits of a Patient Access Scheme (PAS) that improves the cost-effectiveness of regorafenib and is contingent […]

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GIST Support UK’s #100000voices Campaign 2015

March 2015 Jayne Bressington, vice chair of GIST Support UK (http://www.gistsupportuk.com/), talks to BBC Radio Humberside about the government’s plans to stop funding for the rare cancer drug Regorafenib. The petition to stop these cuts has gained 100,000+ signatures and we are now calling on everyone to write to their local parliamentary candidates ahead of […]

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GSUK helps to fund GIST research – 2012

On 20th August we were delighted to present our medical consultant, Professor Ian Judson, with a cheque for £20,000 to help support a new research project. Professor Judson plans to collect data on all the patients who are being or have been treated at the Royal Marsden Hospital, in order to study the correlation between […]

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