GIST Support UK News

Please see the latest news, research and findings below...

NICE Approval of Regorafenib for GIST Cancer Patients – October 2017

NEWS RELEASE Cancer Charity GIST Support UK celebrate the NICE Approval of Regorafenib for GIST Cancer Patients Today GIST Support UK, the key charity specifically focused on combating GIST  (gastrointestinal stromal tumour), celebrated the NICE decision to approve regorafenib, a life extending drug, as a third line treatment for GIST cancer patients in England, ensuring […]

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GIST & Imatinib in the Times Newspaper – August 2017

On 19th August the Times published an article on page 19 entitled: This article by science correspondent Oliver Moody reports on the remarkable impact that Imatinib (Glivec) has had on the lives of many GIST patients and features quotes from our Medical Advisory Board Chair Professor Ian Judson and his colleague Professor Winette van der […]

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Michael Sayers

Michael Sayers – March 2017

It is with great sadness that we have to announce the passing of Michael Sayers. Michael fought a brave battle with GIST for over 13 years and during that time was a Trustee of GIST Support UK. We are sure that many GIST patients and carers benefited from Michael’s advice and support through his postings […]

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Strathbogie Junior Agricultural Club

Strathbogie Junior Agricultural Club Support GIST Patients – November 2016

Thank you Strathbogie Junior Agricultural Club! On Wednesday 16th November we were presented with a cheque for £750 raised by the Strathbogie Junior Agricultural Club in Aberdeenshire. Grateful thanks go to Anna Cowie and everyone who has helped to raise this donation. We really appreciate your help and support! Many thanks to everyone who raises […]

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7th SPAEN Annual Conference, September 8-10, 2016 in Warsaw, Poland

  Once again, the community of patient advocates for sarcomas, GIST and desmoids came together for the annual Sarcoma PAtients EuroNet Conference. This year, Poland was the host country, welcoming all participants with great hospitality and warmth to their beautiful capital Warsaw. The three conference days were full of learning about medical topics ranging from […]

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First GIST Patient Survey – 2016

Don’t miss the deadline! – our first GIST Patient Survey closes on 10th September 2016… Over the next few months we will be conducting a number of surveys which will help us to understand the current treatment landscape for GIST patients in the UK. We are trying to gather as much feedback as possible on […]

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GIST Support UK attends Cancer52 parliamentary reception – May 2016

On 20th April Nic Puntis (Chair GSUK) & Jayne Bressington (Vice Chair GSUK / Patient Director PAWS-GIST, pictured left) went to Westminster and attended a parliamentary reception organised by Cancer52, a coalition of more than 80 charities representing rare and less common cancers. The reception was hosted and addressed by Chairman of the All-Party Parliamentary Group on Cancer […]

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