GIST Support UK News

Please see the latest news, research and findings below...

First GIST Patient Survey – 2016

Don’t miss the deadline! – our first GIST Patient Survey closes on 10th September 2016… Over the next few months we will be conducting a number of surveys which will help us to understand the current treatment landscape for GIST patients in the UK. We are trying to gather as much feedback as possible on […]

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GIST Support UK attends Cancer52 parliamentary reception – May 2016

On 20th April Nic Puntis (Chair GSUK) & Jayne Bressington (Vice Chair GSUK / Patient Director PAWS-GIST, pictured left) went to Westminster and attended a parliamentary reception organised by Cancer52, a coalition of more than 80 charities representing rare and less common cancers. The reception was hosted and addressed by Chairman of the All-Party Parliamentary Group on Cancer […]

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GSUK Research Update – April 2016

In 2012 GIST Support UK granted £20,000 funding to Professor Ian Judson and his team at the Royal Marsden for a research project. This project aimed to collect tissue samples stored in hospital pathology departments for GIST patients who had been treated at the Marsden over previous years and then to retrospectively undertake mutational analysis of […]

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#100,000voices e-petition delivered to No. 10 Downing Street – 23 June 2015

Sincere thanks to everyone who has supported us with the call to retain regorafenib on the Cancer Drugs fund for GIST patients. Yesterday was our appointment with No. 10 Downing Street to deliver our #100,000voices e-petition containing 103,841 signatures supporting retention of regorafenib for GIST patients in England. We were joined by MP’s representing constituents […]

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Regorafenib is now officially back on the cancer drugs fund for GIST patients in England – 2015

23rd May 2015 – We are absolutely delighted to report that Regorafenib is now officially back on the cancer drugs fund for GIST patients in England. This is fantastic news and we would like to thank everyone who contributed to this decision: our fantastic #100,000voices team including William Bassett and the team at TMW. our Clinicians […]

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