We have a number of publications available which you may find helpful. Most are in the form of PDFs which can be downloaded. Alternatively you can email us at firstname.lastname@example.org and ask for a hard copy. A donation towards the cost of postage would be welcome!
Download (PDF, 800KB)
This booklet is an introduction to GIST. It explains what GIST is, how it is diagnosed and what the possible treatments are. The printed version is obtainable from GIST Support UK.
This is a booklet prepared by GSUK on coping the with problems of eating after stomach surgery. It is based on the experience of GSUK patients.
This booklet is intended for patients who have had a total gastrectomy. It may feel rather a daunting and negative assessment of life after removal of the stomach, but we know a number of patients who have learnt to manage this very well, and continue to lead normal lives. It is probably useful to read this in conjunction with the above booklet "Eating after GI Surgery for GIST" since that covers things not mentioned in this booklet.
I am a GIST Patient
Available by post only
This is a useful little pocket book in which you can record details about your GIST and any medication you are on. It is intended for use in the event of a medical emergency. It has spaces for the name of your oncologist, the drugs you are on, etc, and lists the drugs to be avoided if you are on Glivec or Sutent. The booklet is a translation from the German of an equivalent booklet produced by Das Lebenshaus.
100 Questions & Answers about Gastrointestinal Stromal Tumor (GIST)
Available from book sellers
By DeMatteo, Symcox and Demetri (ISBN-13:978-0-7637-3838-9/ISBN-10:0-7637-3838-7). Although this book has been written very much with an American readership in mind, it nevertheless carries a lot of very helpful information about GIST and its treatment. GSUK does not keep copies but you can order it through any good bookseller. It costs about £10.
A leaflet telling you about GSUK.
For distribution as widely as possible, especially in hospital out-patient departments.